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That I had done something to deserve a son that could not say my name. I deserved this. The stares, the comments, the Get your Pete Alonso LFGM Shirt jealousy. This was all mine to bear. One day, I was running after Sam who was collecting acorns when he lunged out towards the street and I tripped grabbing him to pull him back.
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He looked up and said Pud Job good job in Sam speak. The waves of emotion came over me. I gave him a big hug and said, ‘Good job right back. I know we have a long road ahead. I know this is a tough fight. I have had to mourn the loss of a son I never had. But I will never stop fighting. He will not give up and I will walk the path before him until my last breath. I will protect him as best I can. It’s interesting that I can remember that night so clearly. I had just moved back home for Christmas break after my freshman year in college. On Tuesday, December 16th, 2008, I had a doctors appointment with my pulmonologist since my lung function was declining at a rapid rate.
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My team of doctors were concerned and thought about admitting me to the hospital. But as a stubborn 19-year-old, I somehow talked my way out of it. They drew some labs and then I was on my way back home. In hindsight, I wish I would have agreed to the Get your Pete Alonso LFGM Shirt. Later that night, I was still having trouble breathing so I was constantly using my nebulizer. Before going to bed, my dad asked me if we need to go into the hospital and I told him I was fine. I went to bed and about an hour later.