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I will not be terminating this pregnancy and to note it on our chart to never discuss that with us again. She was such a kind nurse and understood how we felt but I think it was her job to let us know our options. We hit the Skull Tough Enough to be a asshole’s wife crazy enough to love him shirt mark with so many unknowns about our son’s health.
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Was our baby going to live? Would he die before birth? That drive to the children’s hospital was two hours long and neither my husband or I said one word. We pulled up to the parking lot and I began crying saying I never thought we would ever be in a place like this. I am sure every family thinks that as well. No one ever thinks things like this will happen to them. It was a full day of testing but we finally got some answers. They couldn’t give us an exact diagnosis but they did state they have never seen a heart like his. It was confirmed his organs were all flipped as well as his heart. He had an underdeveloped left ventricle and it was thought that his top two atriums were also flipped.
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During our pregnancy, SJ’s diagnosis changed weekly it felt like. As he grew it was growing more difficult to get the best images of his heart due to his bone growth. The doctors were not sure what the Skull Tough Enough to be a asshole’s wife crazy enough to love him shirt would be. Worst being he would pass away before anything can be done. Best being they could stabilize him and plan his course of treatment. Following that appointment, there were so many more appointments. Eventually, I was 6 weeks before my due date. Due to the complexity of SJ’s heart, we moved into an extended stay hotel for two months so I could be minutes from the hospital.